Tom Brake – 2016 Parliamentary Question to the Department of Health
The below Parliamentary question was asked by Tom Brake on 2016-04-08.
To ask the Secretary of State for Health, what plans his Department has to work with Muscular Dystrophy UK on increasing access to hydrotherapy pools for people with muscular dystrophy and neuromuscular conditions.
Jane Ellison
NHS England continues to work with Muscular Dystrophy UK through the Bridging the Gap Project, which aims to ensure people with neuromuscular conditions, along with their families, play a leading role in the development and commissioning of the services they use.
NHS England commissions some services for patients with neuromuscular conditions nationally as part of its remit to deliver specialised neurological services. However, the majority of services are provided outside of specialised centres and are the responsibility of clinical commissioning groups to provide, should they deem it clinically appropriate. This includes services such as hydrotherapy.
In 2012 Muscular Dystrophy UK, working with the Department’s National Institute for Health Research (NIHR) issued a call for research proposals into the clinical effectiveness of hydrotherapy in maintaining physical function in people with Duchenne muscular dystrophy (DMD). The call was made because there is little evidence to support the use of hydrotherapy in relation to DMD and other neuromuscular disorders. The NIHR Health Technology Appraisal programme is now funding a pilot study to look at hydrotherapy for the treatment of DMD, with an evaluation report expected in January 2017.
