Lord Shinkwin – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by Lord Shinkwin on 2016-03-17.

To ask Her Majesty’s Government how much has been invested in the last year in (1) Down’s Syndrome research, (2) Down’s Syndrome screening, and (3) support for people with Down’s Syndrome.

Lord Prior of Brampton

The information requested on total investment in Down’s syndrome research is not available. Spend on research funded directly by the National Institute for Health Research (NIHR) is categorised by Health Research Classification System (HRCS) health categories including ‘congenital disorders’. There are no HRCS health sub-categories, such as for Down’s syndrome or other specific syndromes.

To obtain how much the National Health Service invested in Down’s syndrome screening in the last year would incur a disproportionate cost.

Data on how much has been invested in the last year on support for people with Down’s syndrome is not held centrally.