Lord Freyberg – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by Lord Freyberg on 2016-07-11.

To ask Her Majesty’s Government, further to Written Answer by Lord Prior of Brampton on 7 July (HL829), why Genomic England cannot supply data without delay on the number of patients in the cancer programme who have subsequently died, in the light of the fact that the Office of National Statistics states that the information is available within two months of death from the cancer registry.

Lord Prior of Brampton

The arrangements for Genomics England to access patient data are different from the routine data supplied by the Office of National Statistics or other centralised patient data services. The wider patient dataset (including mortality data) will be imported and linked when the genome data is made available to researchers.