Lord Freyberg – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by Lord Freyberg on 2016-06-28.

To ask Her Majesty’s Government, further to the Written Answer by Lord Prior of Brampton on 27 June (HL645), why no information is available of the number of patients who have died to date, particularly for those patients who consented prior to that answer.

Lord Prior of Brampton

Genomics England participants have consented to the collection of long term health data via the Health and Social Care Information Centre. This includes data on death but these data are collected and checked in accordance with standard procedures which means that there is a delay in linking to the whole genome sequencing data.