Lord Bassam of Brighton – 2014 Parliamentary Question to the Department of Health
The below Parliamentary question was asked by Lord Bassam of Brighton on 2014-05-06.
To ask Her Majesty’s Government how many neurofibromatosis sufferers they estimate to be in the United Kingdom, broken down by (1) county, and (2) type.
Earl Howe
NHS England commissions neurofibromatosis type two (NF2) services and complex neurofibromatosis type 1 (NF1) services as part of its remit to deliver specialised services.
NHS England has published service specifications for both types of neurofibromatosis. These estimate that in England there are 11,267 individuals with NF1 and 862 with NF2.
The Department does not have specific guidance relating to the special travel needs of neurofibromatosis sufferers. Domestic equality legislation makes it unlawful for transport operators to discriminate against a disabled person simply because they are disabled, treat disabled people less favourably or fail to make reasonable adjustments in the way they provide their services, depending on the type of vehicles and the services they offer to the public.
Furthermore, an extra level of protection is provided by recently implemented European regulations on passenger rights across all transport modes. These provide a set of rules for the treatment of disabled people and people with reduced mobility.
