Lord Alton of Liverpool – 2016 Parliamentary Question to the Department of Health
The below Parliamentary question was asked by Lord Alton of Liverpool on 2016-04-12.
To ask Her Majesty’s Government, further to the Written Answers by Lord Prior of Brampton on 23 March (HL6930 and HL6954), how the patient information and consent forms originally submitted to the Human Fertilisation and Embryology Authority (HFEA) explicitly described the process of genome editing in human embryos by means of CRISPR-Cas9; whether such previously licensed research has now commenced; if so, when the HFEA received evidence of ethics approval; and what have been the reasons for the further delay in commencing such research in the light of previous complaints about delays by the person responsible in her correspondence to the HFEA dated 15 December 2015 and 12 January 2016.
Lord Prior of Brampton
The Human Fertilisation and Embryology Authority (HFEA) has advised that the original patient information is part of the information presented to the Licence Committee and this was sent to the noble Lord on 7 March 2016. The research involving gene editing has not yet started. The HFEA is awaiting final confirmation that the changes to the patient information and consent forms requested by the research ethics committee have been made.
