Lord Alton of Liverpool – 2016 Parliamentary Question to the Department of Health
The below Parliamentary question was asked by Lord Alton of Liverpool on 2016-03-11.
To ask Her Majesty’s Government, further to the Written Answers by Earl Howe on 22 January 2013 (WA194–5) and by the Parliamentary Under-Secretary for the Department of Health, Mr George Freeman, on 8 March (HC29426), what control the Human Fertilisation and Embryology Authority (HFEA) has over the contents of any external website, such as that maintained by the Francis Crick Institute; what prior examples they can provide in which (1) either centre 0157 or 0206, or (2) any other licensed centre, has immediately and voluntarily altered the publication on their websites of clinical success rate data or information on costs in response to a request from the HFEA to do so; and what assessment they have made of how any expectations that licensed centres would comply with such requests might be affected by the Francis Crick Institute’s claim that it is exempt from the Freedom of Information Act 2000 as a private body that has hitherto not provided copies of the patient information and consent forms directly for that reason.
Lord Prior of Brampton
The Human Fertilisation and Embryology Authority (HFEA) Code of Practice, at section 4.5, sets out the obligations on a licensed treatment centre regarding information provided on its website; other relevant marketing communications; and in relation to associated satellite and transport centres. This is in line with the Advertising Standards Authority Code. This guidance does not apply to licensed research centres.
Assessment of the websites of licensed treatment centres is made during inspections undertaken by the HFEA, or in response to ad hoc instances where information has come to us suggesting breaches of these requirements. There have been a number of examples where clinics have voluntarily and immediately amended the content of their websites and it would not be proportionate to set out all such examples. The HFEA has no statutory powers relating to the costs of treatment.
The fact that the Francis Crick Institute is exempt from the Freedom of Information Act 2000 has no impact on the HFEA’s expectations of licensed centres’ websites.
