Lord Alton of Liverpool – 2016 Parliamentary Question to the Department of Health
The below Parliamentary question was asked by Lord Alton of Liverpool on 2016-03-11.
To ask Her Majesty’s Government, further to the Written Answers by Lord Prior of Brampton on 7 March (HL6225) and 8 March (HL6323), and the letter from the Chief Executive of the Human Fertilisation and Embryology Authority (HFEA) to both Lord Alton of Liverpool and the Department of Health on 7 March, whether there are any principled reasons why copies of the patient information and consent forms submitted to the HFEA by the person responsible in order to perform genome editing in human embryos by means of CRISPR-Cas9 have not yet been made publicly available; if so, what those reasons are; and if not, when they will place those documents in the Library of the House.
Lord Prior of Brampton
The Human Fertilisation and Embryology Authority (HFEA) has advised that it is has no objections to these documents being placed in the Library. While licence applications and associated documents are not routinely placed in the public domain, inspection reports relating to licence renewal applications and the minutes of the licensing Committee’s decision, which contain lay summaries, are published on the HFEA’s website.
Licence applications may contain third party personal information. On this occasion, a copy of the research licence application and associated documents is attached with third party personal information redacted.
