Kerry McCarthy – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by Kerry McCarthy on 2016-05-26.

To ask the Secretary of State for Health, if he will estimate the additional costs incurred by a family raising a child with cystic fibrosis.

Jane Ellison

The Department has made no such assessment. The families of children with cystic fibrosis may be eligible for social care support, continuing care in the home, and Disability Living Allowance or Personal Independence Payments, based on the level of the child or young person’s needs.

The number of children under the age of 18 with cystic fibrosis is not collected centrally. It is estimated that one in every 2,500 babies born in England has cystic fibrosis.