Jim Shannon – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by Jim Shannon on 2016-01-27.

To ask the Secretary of State for Health, what steps his Department is taking to increase public awareness of rare diseases.

George Freeman

The UK Strategy for Rare Diseases was published in 2013 and is currently being implemented across all four countries of the United Kingdom. The UK Rare Diseases Forum monitors the implementation of the Strategy and provides the Department with advice on rare disease policy development, including awareness raising. The 100,000 Genomes Project, a world-leading initiative launched by the Prime Minister in December 2012 has rare diseases as one of its key priority areas.