Craig Tracey – 2016 Parliamentary Question to the Department of Health
The below Parliamentary question was asked by Craig Tracey on 2016-04-08.
To ask the Secretary of State for Health, if he will take steps to require health commissioners to make publicly available information on how they commission palliative care for children and young people across their locality.
Ben Gummer
A review of the allocation methodology of the annual children’s hospice grant is being considered to support an equitable, transparent and evidence based formula making use of data from all children’s hospices in 2016/17. The aim is to provide clear advice to hospices on the grant for 2016/17 and a proposed way forward to review the formula and how hospices can contribute to that process.
Adult hospices, including voluntary sector hospices, receive on average around a third of their funding from the National Health Service and it is for local commissioners to ensure that the services they commission meet the needs of their local populations, including in end of life care.
Clinical commissioning groups (CCGs) have responsibility for ensuring that they are meeting the needs of those requiring children’s palliative care services, considering the full range of local provision, both statutory and voluntary sectors, and the wishes of children and young people and their families. CCGs will need to make sure that they provide information on the support available locally for children with palliative care needs and their families.
Many maternity units have specialist bereavement midwives and dedicated bereavement suites to support parents but we know that this support is not available in every unit and we are currently considering the actions that we can take to improve bereavement services further. For families of older children and young people chaplaincy services may be able to provide support.
It is the responsibility of the professional regulators to set the standards and outcomes for education and training and approve training curricula to ensure newly qualified healthcare professionals are equipped with the knowledge, skills and attitudes to provide high quality patient care. It is the responsibility of employers to ensure staff receive appropriate development to deliver safe and effective healthcare. This includes training in providing care to children and young people with life-shortening conditions.
