Ben Howlett – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by Ben Howlett on 2016-03-14.

To ask the Secretary of State for Health, what the implications for his Department’s policies on people with rare forms of kidney disease are of the report of the Rare Disease Forum, Delivering for patients with rare diseases: Implementing a strategy, published on 29 February 2016; and if he will make a statement.

George Freeman

The Department is committed to improving the diagnosis and treatment of rare diseases for all patients, including those with rare forms of kidney disease through implementation of the UK Strategy for Rare Diseases, published in November 2013.

The UK Forum report, Delivering for patients with rare diseases: Implementing a strategy, published on 29 February 2016 includes 51 specific commitments to improve the lives of all those affected with rare diseases. The measures focus on improving diagnosis and early intervention for patients affected by a rare disease.

The UK Rare Disease Forum is working to ensure that specific commitments in the Strategy are embedded in policy development and implementation across the United Kingdom.